Significant yet not widely talked about, one of the greatest issues and stressors many families have to cope with is that of chronic illness. While the family that has to cope with a loved one’s battle with cancer or a traumatic car accident is at the forefront of the minds of all those close to them, coming up in conversation and the target of prayers and well wishes, families coping with chronic illness often fade into the background. Perhaps the reason individuals do not often hear of or think of those that are chronically ill or disabled is because after the shock of an initial diagnosis, the reality of chronic illness fades from people’s thoughts because it becomes a part of ordinary, everyday life. For the many families that deal with …show more content…
My grandmother became her primary caretaker, and after my birth, my primary caregiver. Pregnancy and childbirth greatly exacerbated my mother’s illness due to hormone levels and stress, so she was almost entirely incapacitated for the first few months of my life. This created additional responsibility in caring for me for my grandmother, and my aunt. As I grew older, my mother’s weakened immune system made it unsafe for me to stay in the house if I were sick, causing me to stay with my aunt frequently while getting over the flu or other childhood illnesses. This elevated her responsibility from an extended family member to a parent like figure. I also experienced different responsibilities from other children my age as I got older. For example, at age seven I began giving my mother the injections she needed every other day because after being allowed to try it once, it was found that I was able to do it more painlessly than my grandmother. Things like unloading my mother’s wheelchair, walker or scooter, and assembling it became second nature. I think my family would have felt less strain if we had had a greater support system outside of our family. While family involvement is essential in the success and wellness of a chronically ill person, outside support is essential for the …show more content…
I felt the full effect of my mother’s illness on my future plans after my grandmother’s death my senior year of high school. With the responsibility for my mother’s well being now solely my responsibility, it no longer seemed possible to go away for school, and after transferring to Dallas Baptist University, I am still only thirty five minutes away from my mother’s home. I find it difficult to plan for the future and live in the present, as encouraged in “Living as a Family in the Midst of Chronic Illness”, without also falling into fear of the future. I fear that in the future I will be called to a job in another city or state away from my mother, or that her health will deteriorate enough that she requires full time care. Knowing that my mother does have a shortened life expectancy, I feel a greater sense of guilt when I have not called or visited in awhile than the average college student. I have found that the best way to stay grounded in the present is through the appreciation of the health and independence my mother does have, and a hope and belief that God will provide for the
Living with a chronic condition not only effects the individual, but it effects the entire family. An adolescent living with a chronic health condition not only depends on their family for support, but also on support from their friends, classmates, and healthcare team (Rostami, Parsa-Yekta, Najafi Ghezeljeh, & Vanaki, 2014). Supporting an individual with a chronic disease leaves an emotional impact and can be financially straining as well. Families living with a sick child must find strategies to cope. Whether the coping strategies utilized are positive or negative, they leave a lasting effect on the entire family, as well as the child living with the condition (Woodson, Thakkar, Burbage, Kichler, & Nabors, 2015). Involvement of the parents in this situation is vital to the child’s future success in managing their illness (Landers, Friedrich, Jawad, & Miller, 2016). This paper will explore one family’s story of living with, and coping with, a child who has recently been diagnosed with Type 1 Diabetes (T1D).
It was near the end of winter 2005, when my grand-aunt suddenly fell ill. In a short period of time her illness worsened and the doctors informed my family, my grand-aunt only had a couple of months to live. The news was devastating to my family as we watched a vivacious, independent, and outspoken woman, who enjoyed shopping, reading mystery novels and spending time with family become very weak and confined to her bed. Instead of placing my grand-aunt in a hospice facility, my family and I, with the assistance of a hospice nurse cared for my grand-aunt in her home until her passing.
When someone is suffering or living with a chronic illness it can have a huge impact on them psychologically and socially. Chronic Illness is a condition that is prolonged in duration, usually more than 3 months and is rarely cured (DoH, 2012). Having to cope with a chronic condition might lead to life changes, such as dependency on others, loss of income, which can cause feelings of loss and reduced self-esteem. They can also report feelings of social rejection, poor healthcare and workplace termination due to their presenting condition (Earnshaw, Quinn, & Park, 2011).
A caregiver interview was completed with 70-year-old J.R., one of 66 million people providing unpaid care as a family caregiver, to find out more information on caregiver stress and strain (Collins & Swartz, 2011). J.R. is the live-in spouse of R.R., who is 78 years old, suffers from bronchiectasis and congestive heart failure, and is on oxygen full time. Through this class and additional research, I have learned that being a caregiver of someone with a chronic illness can be difficult. Research shows that caregivers who live with the care recipient, often experience very high levels of strain (Collins & Swartz, 2011). Along with dealing with role stress and strain, research suggests that caring for someone with a chronic illness can cause physical, psychological, and financial burden for the caregiver (Collins & Swartz, 2011).
Chronic illness sucks. Many families in Canada and around the world live with a person who has one or more chronic condition. Chrionic conditions can range from heart disease, injury, cancer, and mental illness. Chronic conditions are “impairments in function, development, or disease states that are irreversible . Chronic illness Over the course of three interviews This paper will explore the effects of chronicity on families living with chronic condiditons through research and recounting of interviews .
The greatest threat to democracy as a way of life, not just a political arrangement, but as an attitude of mind - is authoritarianism. Authoritarianism is stoked by fear, both rational and irrational, and it looks to a strong punitive leader who promises to use force to end threats by outsiders and persons "not like us." It seeks order and stability at all costs. It subscribes to a command-and-obey or "top down" or hierarchical mentality. This is directly opposed to a democratic or "horizontal" mentality, characterized by openmindness, cooperation, and respect for others as equals.
Just like when someone is diagnosed with cancer and cannot do all of the tasks they once could, roles in a relationship will change. With an Invisible Chronic Illness there is no difference, but just like their illness their disabilities can sometimes be invisible. People tend to identify themselves as the role they play in society, so when an Invisible Chronic Illness comes into play it can threaten someone’s sense of self (Donoghue and Siegel, 179). With any illness there will be a decline in independence, causing reliance on family members to fulfill
Unexpectedly, my father called and with an unsteady voice explained, “I had to take your mother to the emergency room, and she is now being admitted to the hospital.” At age 13, this phone call began the most dreadful time of my life. Prior to this event, I was exceedingly dependent on my parents and even struggled with separating from them. In the beginning of my mother’s hospital stay, my familymy parents and two, younger sisters were constantly divided. My father stayed in the hospital with my mother, while my sisters and I would switch between caring family members and friends. Eventually I grew tired of different environments and decided that staying home alone was the far better option. As a result, I appreciate independence and know how to solely maintain a home.
This is a sponsored post. I have been compensated for my time through the Chronic Illness Bloggers network. All opinions remain my own, and I was in no way influenced by the company.
On January 5, 2009 my father pasted away. He and I did not have the typical father-son relationship; we did not have a relationship at all. I presumed that it would have a little if any affect on me. However, as the semester continued, it seemed to get worse. Besides my father’s passing, several weeks later my grandmother was diagnosed with dementia. It was difficult for me to deal with, but it was more difficult for my mother to handle.
A child is not their disease, neither is their family. However, it is often difficult for them to disconnect their self from the detrimental effects of it. In spite of the fact that the majority of the American population appears quite healthy, over 32 million children are currently suffering from a chronic illness. According to njhealth.org, chronic illness is “an illness that may last throughout a person’s life, although the frequency and severity of symptoms can change.” Nearly 43% of American children are currently afflicted with at least 1 of many chronic ailments ranging from diabetes to cancer. Many of these children may never return to their precedent state of well-being; physically, emotionally, socially, and psychologically. During such horrific times as these it is important to remember that the children are not the only ones suffering; their family is as well.
Being diagnosed with a chronic condition early on in life, and having an older sister who died from the same condition, could be enough to send someone into a deep depression and make it difficult to manage the disease. Her family’s continual support during her times of illness and recovery allows her a safe setting to adapt to any changes or new deficits and learn to cope successfully, which Grey, Knafl, and McCorkle (2006) explain, can lead to greater
Thompson (2009) acknowledges that if one family member is experience a chronic illness it affects the entire family and every single member needs to be considered. Children who have a chronic illness like like cystic fibrosis can struggle with their peers, could have depression or anxiety, behavioral issues, and body image struggles (pg. 258). Thompson (2009) also notes that “psychosocial interventions for children and families to support their coping with chronic illness have proven effective. Pushing the families to understand the illness and the child’s treatment is the key to living a happy life (pg. 259).
Having a long-term, or chronic, illness can disrupt your life in many ways. Your physical abilities may be altered limiting your independence. You may not be able to work, causing financial problems. For family members, this can be frightening, because they may not understand why this is happening. These changes can cause stress, anxiety and anger, leading to depression. Coping techniques from a professional counselor can help a family and patient work through these transition periods of the disease process. Family meetings allowing open communication will provide a judge free environment for family members to ask questions and receive answers to gain a better understanding of the personal struggle the person with the chronic disease is dealing with, further more enabling the family to revel their struggles with this as well.
Most medical treatment for chronic pain includes from pharmaceutical treatments for pain management, which can range from over-the-counter medicines like aspirin to prescription drugs. The problem with chronic pain management treatments that involve drugs is that they lose their effectiveness. Worse they actually can create more chronic or that can add to the chronic pain cycle.