One of the few inevitabilities in our life is death. Whether there is more after death is up to interpretation but there is no arguing that at some point, every life must come to an end. Sociological studies and the evolution of hospice care have brought this inevitability to light and provided important dialogue about death and the dying process, particularly as they relate the impact of social and professional relationships an end term patient may have at the time they are dying. A study was conducted was conducted by Dr. Karen Steinhauser that polled end care patients about what was important to them leading up to the time of their death. This poll found that 90% of these patients found it important to say goodbye to important people and 86% of patients found it important to resolve unfinished business with friends and family. From these findings it can be inferred that one of the most important things to people as they near the end of their lives is to find peace and leave this earth with no regrets. This can be summed up by the word closure, which is defined as a feeling that an emotional social or personal relationship or traumatic experience has been resolved. Reaching closure is often closely interrelated with the various personal connections, professional relationships and social status we accrue over our lifetime, and there are a number of avenues for achieving a feeling of closure. This concept is illustrated when we look at how one reaches closure when examining
On reading this article and identifying the study, there was a clear insight on how death and dying, and even improved health, impacted those nurses (Conte, 2014). Nurses, who worked closely with their patients, through the perils and suffering, culminating of death and losses, had grief not readily explored to enable that comfort zone (Conte, 2014).
Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely
The aim of a hospice is to improve the quality of life of the dying
Getting prepared for death can be an exhausting experience for the patient and their family. It is very important that the patient not only knows what they want as far as their right to receive or reject treatment and medications or knowing whether they want to receive palliative care at home or in a hospital setting to include the advantages and disadvantages of each. The main focus of this paper is to give the reader an in depth look on how an end of life crisis affects a patient and their family. Ella is a breast cancer patient who just came out of remission and is at the end of her life.
Key people could be family, doctors, carers, religious leaders etc. Each may own distinctive role to play in order for the choices and preferences of the individual to be respected and carried out. [ Every person’s end-of-life trajectory is different and needs differ in intensity and quality over time. End-of-life care must adapt to the varying and changing needs of the individual over time and that it cannot be limited to certain settings or services. The provision of good
Caring for patients at the end of life is a challenging task that requires not only the consideration of the individual as a whole but also an understanding of the
Caring for patients at the end of life is a challenging task that requires not only the consideration of the patient as a whole but also an understanding of the family, social, legal, economic, and institutional circumstances that surround patient care.
Death is one of the most avoided topics because of the finality that comes with it and the fear of the unknown after death. However, there are quite a number of authors such as AtulGawande, Elisabeth Kubler-ross and Ira Byock who have attempted to go ahead and deal with death as a topic and other connected topics.Each of these authors have delved into one of the most revered topics that is death including related topics that come with it such as the dying process itself. Ira Byock’s Dying well: Peace and possibilities at the end of life is a book that looks at the moment prior to death when an individual is terminally sick and is at the point of death. A
It is only human and natural to feel hopelessness and despair as one gets closer to the grave. Religion is an important part of coping with this desperateness. Incorporating a deeper understanding and practicing religion helps with understanding life and death. Spirituality may be one of the most important components mental, spiritual and social health as one crawls towards end of life (Dose, (2007). A study by Dose, (2007) looked at experiences of spirituality in older adults at the end of their life, especially those receiving hospice care. Participants were asked about their “spiritual journey”. The study concluded that spirituality is important to most of the participants of the study and shaped their views in terms of correctness and moving on. A view of life in terms of religion and spirituality was important to them as they neared the end (Dose, 2007). They also found that spirituality helped with coping with their pain and reduced the stress of being
Long-term care is a result of people having terminal conditions, disabilities, illnesses, injuries, or being elderly. The purpose of long-term care is to provide services to people and to aid people at a time in their lives when they cannot depend on themselves to maintain daily activities. There are many variations of long-term care available – such as home care, adult day care, and independent and assisted living, personal care facilities, nursing homes, and hospice.
This report is focusing on elderly patients who are on a palliative care unit, and how they are respected and their dignity is persevered throughout their end of life care in a hospital setting. Throughout the Inter-Professional Learning (IPL) seminar sessions, there was many student midwives, student adult, child and learning disability students. There were many topics suggested and discussed between the group, which helped aid us choosing our focused topic. Grumbach and Bodenheimer (2004) reinforces the argument about IPL groups are important, as they found that when health practitioners work together has a positive impact on the patient outcomes. Therefore, they believe that IPL groups should be fundamental part of health professionals
The ideology in the field in which I work that I oppose is that of placing sick patients in hospice and withdrawing all their medical resources. Many patients are placed in hospice because they are at a certain stage in which they are medically able to be cured, being that there is nothing else medically that can be done for them. Being on hospice care includes an end to iv-line treatment and medication. This hastens the patients meeting with death as they are being deprived of the medical assistance in which played a tremendous role in the stability of their health.
Elizabeth Kübler-Ross was a Swiss-born psychiatrist who spent two years of her professional career gathering information from terminally ill patients to create the premise for On Death and Dying. “It is not meant to be a textbook on how to manage dying patients, nor is it intended as a complete study of the psychology of dying.” (Kübler-Ross, 1969). This book was written as a call-to-action; to raise awareness of the voice of the dying. Not only is there stigma surrounding the topic, but also numerous misconceptions concerning the emotional journey of the terminally ill. The Kübler-Ross Model creates a framework for those interacting with dying persons, to help caretakers better understand the transitions that are taking place, resulting in higher-quality care. This model is comprised of five stages, which can be experienced in a variety of combinations. Prior to the first stage, the patient must be delivered the news of their illness or the severity of their illness, which usually results in shock. Denial is the first stage noted by Kübler-Ross. Denial and isolation are normal responses to overwhelming emotions and serve as a temporary response until the individual is ready to accept reality. Although this defense mechanism is normative, it is important to note that it isn’t necessarily healthy, and that some never move past this stage. As reality sets in, pain beings to emerge and manifests itself in the next stage: anger. Rationality takes a
Elisabeth Kübler-Ross, (2014), a Swiss-born American psychiatrist, introduced concept of providing psychological counselling to the dying. In her first book, On Death and Dying (published in 1969), she write about the “five stages of grief”, they are denial, anger, bargaining, depression, and acceptance. based on her studies of the feelings of patients facing terminal illness, and have being generalised to other types of negative life changes and losses, such as divorce, loss of property or job, and offered strategies for treating patients and their families as they negotiate these stages.
Our society finds it difficult to talk about dying and euphemisms are the norm. It is typical for both doctors and patients to be hesitant to initiate a discussion on dying. Focus instead is often more often placed on interventions and actions for managing symptoms. This avoidance can leave patients and their families unprepared for the inevitable death. (Schapira, 2010) It also often results in requests for therapies which may be excessive, costly and even painful in the hopes for a cure. One study demonstrates that when patients are aware that they are terminally ill, the majority are able to reach a state of peacefulness and also exhibit lower levels of distress. (Ray, Block, Friedlander, Zhang, Maciejewski & Prigerson, 2006) It is also important that family members are willing to discuss end-of-life options with their loved ones. According to elderly patients, they are most often the ones who initiate these conversations with their